Advancing Research and Treatment for Frontotemporal Lobar Degeneration (ARTFL)

Our Research. Your Story.

Research is happening at Massachusetts General Hospital (MGH) that is focused on learning about the cognitive abilities, personality, and other traits of people who have more than one blood relative affected with Frontotemporal Degeneration (FTD), Alzheimer’s disease, and related disorders.

You Can Contribute to the Cause

Diagnosis of FTD is often challenging and current treatment options are limited.  We hope that the scientific research we are conducting at MGH will change that for future generations.

We are seeking people or relatives of people who have been diagnosed with FTD, Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD) or FTD with Amyotrophic Lateral Sclerosis (ALS), or have a relative with a mutation in the three most common genes associated with FTD (MAPT, PGRN/GRN, C9ORF72). By listening and learning about you and your family, we hope the knowledge gained from this work will help researchers and doctors to learn if there are certain cognitive or behavioral traits that can help predict the development of these disorders.

More information about the study is attached.